Contributed by Bob Rawlins, oxygen user and consultant to CAIRE Inc. ~
Yep, we have pretty much have heard it all our lives, right? From when we were kids growing up, throughout school, into our working years, even if you had the toughest job on the planet, a stay-at-home parent, you needed to find a way to keep things organized, stay somewhat on time, and fit so many things into your day.
For me, I used all kinds of systems, Franklin planners, to-do lists, notes after notes, stickems on the steering wheels like, “Don’t forget to stop and get milk on the way home or don’t come home,” LOL.
I use to see people put all kinds of stickems on their computer screens. This cracked me up. On a computer screen, really?
As I graduated into the digital age I used other tactics to stay more organized and still to this day use many of the same habits when it comes to keeping track of all the “stuff” we have to when it comes to our journey with living with chronic lung disease or illness.
One of the things we discuss and understand all the time is that it is important to keep our stress levels to a minimum. Keeping organized really helps us do that.
It is so easy to get overwhelmed with doctor appointments, meds, understanding medical coverages, etc. …
Even If you did or did not work outside of the home, one thing that is important it to learn is how to delegate. No different here. Ask for help and give some of your closet friends and family things to do that will help lower your stress and manage your needs.
My wife was so fantastic when I first got sick and was in the hospital.
From day one she kept a journal on everything so she could keep track of everything – including the follow-up appointments. Scheduling them, arranging them around all the other events we have going on and making sure she could be with me on as many appointments as often she could.
Could I have done it? Absolutely, but it is important to her, to remain very close to my journey, understand the progress, and be aware of the ups and downs. I love her so much for that, and it helps keep my stress level down and, more importantly, continue to deal with this every day. We are a team! It also helps the rest of our family and kids see how close we are and that we are all in this together.
So, delegate is #1, and don’t feel guilty about it. You have been taking care of people for years, now it is your turn. 🙂
Whether you are comfortable with the computer or not, it doesn’t matter. But my suggestion is:
Write things down when you think of them
I have so much going on in my head lately that I have pad of paper close by me everywhere I go and including my smartphone. When I think of something, I write it down or I text it to myself.
Especially, if you wake-up in the middle of the night, something on your mind, write it down, you can probably go back to sleep again. This really helped when I was working.
Schedules, deadlines, and bucket lists
I don’t get too crazy with this except, Bucket Lists – what you want to do and what is important for you to accomplish. Share this with others, and let them help you get there. The other – schedules and deadlines are the appointments and follow-ups of course. Exercise? GET OUT of the house! Even just to SHOP. I make excuses to get out, and create reasons to go out. It becomes a game with my wife and kids, LOL. They will say, “Dad, where are you going now?” I’ll reply, “I have to run an errand, do you want to come?” I usually get a taker even if it is my ole’ sidekick, Opal, our puppy. 🙂
Think about, why take away valuable time to perform this function of nothing. Make every day count. A small victory of some sort. It does the mind, body and soul good.
Ok, any other suggestions or thoughts? Please share them with me.
Next, we can talk about keeping all the meds straight, several ways to do that. I take several every day and a few at night before bed. It has now become a part of my routine.
‘Til next time!
– Coach Bob
Bob Rawlins, 59, of Medina, Ohio, is husband to Terese and father to their 13-year-old triplets, a soccer coach, a hospital volunteer, and marketing guru. He has been on oxygen therapy for more than a year. He enjoys skiing and golfing with his SeQual eQuinox portable oxygen concentrator.
If you have been prescribed oxygen therapy, learn more about CAIRE wearable, portable and stationary oxygen concentrators by visiting www.cairemedical.com or calling 1-877-704-0878 to talk to an oxygen advisor.
When using any oxygen therapy device please consult the applicable product instructions for use for product indications, contraindications, warnings, precautions, and detailed safety information.
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